Pain associated with sickle cell disease can be very severe with debilitating effect on the
sufferer. This study sought to gain an in-depth understanding of the experiences of
individuals who suffer sickle cell pain. The study employed qualitative methodology
using exploratory descriptive design to achieve the purpose of the study. Participants
were purposively recruited from the Accra Metropolis. Data saturation was achieved
with fifteen (15) participants. One-on-one interviews were conducted and audiotaped.
The interviews were transcribed verbatim and analyzed concurrently using thematic
content analysis. This study was guided by the Siddall, Lovell & MacLeod, (2015)
conceptual framework which is a Biopsychosocial-Spiritual model. Findings indicated
five main themes: physical experiences of sickle cell pain, psychological experiences of
sickle cell pain, social experiences of sickle cell pain, spiritual experiences of sickle cell
pain and the pain management experiences of sickle cell. Participants were unable to do
anything for themselves, had support from others, had fear of death, worry and
insomnia, were stigmatized by school mates and working colleagues and felt depressed,
isolated and rejected and some lost their job. They coped with sickle cell pain through
belief in God and use of multimodal pain management strategies. Participants
experienced poor attitude of caregivers and lacked access to health and specialist care
when in pain. In conclusion, it was recommended that effective pain management
should be provided for individuals with sickle cell disease. The care should be integrated
in the national health insurance scheme.
CDR, C (2021). PERSPECTIVES OF PEOPLE LIVING WITH SICKLE CELL PAIN IN THE ACCRA METROPOLIS. Afribary.com: Retrieved April 15, 2021, from https://afribary.com/works/perspectives-of-people-living-with-sickle-cell-pain-in-the-accra-metropolis
Coalition, CDR. "PERSPECTIVES OF PEOPLE LIVING WITH SICKLE CELL PAIN IN THE ACCRA METROPOLIS" Afribary.com. Afribary.com, 02 Apr. 2021, https://afribary.com/works/perspectives-of-people-living-with-sickle-cell-pain-in-the-accra-metropolis . Accessed 15 Apr. 2021.
Coalition, CDR. "PERSPECTIVES OF PEOPLE LIVING WITH SICKLE CELL PAIN IN THE ACCRA METROPOLIS". Afribary.com, Afribary.com, 02 Apr. 2021. Web. 15 Apr. 2021. < https://afribary.com/works/perspectives-of-people-living-with-sickle-cell-pain-in-the-accra-metropolis >.
Coalition, CDR. "PERSPECTIVES OF PEOPLE LIVING WITH SICKLE CELL PAIN IN THE ACCRA METROPOLIS" Afribary.com (2021). Accessed April 15, 2021. https://afribary.com/works/perspectives-of-people-living-with-sickle-cell-pain-in-the-accra-metropolis