Abstract
The prevalence of gout has increased over the last few decades. Of the 291
conditions studied in the Global Burden of Disease (GBD) (2010), gout ranked 138th
for disability and 173rd for the overall burden of disability-adjusted life years.
Statistics assume that in a population of 71,233 there are 200 people in the Omaheke
region suffering from gout (Extrapolation of Prevalence Rate of Gout to Countries
and Regions, 2015). This is evidence for a need to optimize management of the
disease.
This study explores the experience of adults suffering from gout and of their
caregivers in the Omaheke region, with the aim of developing a self-management
programme to provide participants with education for diet and lifestyle changes for
better management of their ill-health.
The researcher adopted a qualitative, phenomenological, exploratory, and descriptive
approach. Two groups of participants (fourteen adults suffering from gout; and seven
caregivers) were interviewed to learn their responses. Those suffering from gout
were asked to report their experience of suffering from gout, and the caregivers were
asked about their experiences of caring for their relatives. The research questions for
those with gout and two caregivers were answered in unstructured individual indepth
interviews; five caregivers took part in a focus group discussion. Observations
of the participants’ reactions were also noted.
During Phase 1 of the research—a situation analysis—the phenomenological
approach for collecting data from selected participants was used. The resultant
inductive data analysis was used to develop a self-management programme.
During Phase 2, the conceptualization framework guided the development of a selfmanagement
programme, using the Practice Oriented Theory of Dickoff et al.
(1968).
During Phase 3—the development of a self-management programme —an adapted
version of three theories was used. The most prominent of these was the framework
of the Chronic Disease Self-management Programme (CDSMP) which has shown
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improvements in several areas. The Person-centered Care Theory—based on Carl
Rogers’s belief that the person is the expert concerning their needs, and Knowles’s
Adult Learner Theory in which the adult learner is seen as self-directed to learn,
were theories used to inform the educational process.
In Phase 4, in a two-day training workshop the self-management programme was
implemented and evaluated. Evaluation occurred immediately after every session
and a summative evaluation at the end of the programme, to verify whether its
interventions were likely to bring about the desired change among the participants. A
programme outcomes evaluation was carried out three months after implementation
of the programme.
Responses revealed great physical and psychological discomfort from gout,
accompanied by disrupted sleep, decreased self-efficacy and social
disconnectedness. Information was also seen as important for reducing predisposing
factors and managing the illness, and recommendations were made for extending the
impacts of the programme.
TIBINYANE, M (2021). A Self-Management Programme To Empower Adults Suffering From Gout And Their Caregivers In The Omaheke Region, Namibia. Afribary. Retrieved from https://afribary.com/works/a-self-management-programme-to-empower-adults-suffering-from-gout-and-their-caregivers-in-the-omaheke-region-namibia
TIBINYANE, MARIA "A Self-Management Programme To Empower Adults Suffering From Gout And Their Caregivers In The Omaheke Region, Namibia" Afribary. Afribary, 28 Apr. 2021, https://afribary.com/works/a-self-management-programme-to-empower-adults-suffering-from-gout-and-their-caregivers-in-the-omaheke-region-namibia. Accessed 23 Nov. 2024.
TIBINYANE, MARIA . "A Self-Management Programme To Empower Adults Suffering From Gout And Their Caregivers In The Omaheke Region, Namibia". Afribary, Afribary, 28 Apr. 2021. Web. 23 Nov. 2024. < https://afribary.com/works/a-self-management-programme-to-empower-adults-suffering-from-gout-and-their-caregivers-in-the-omaheke-region-namibia >.
TIBINYANE, MARIA . "A Self-Management Programme To Empower Adults Suffering From Gout And Their Caregivers In The Omaheke Region, Namibia" Afribary (2021). Accessed November 23, 2024. https://afribary.com/works/a-self-management-programme-to-empower-adults-suffering-from-gout-and-their-caregivers-in-the-omaheke-region-namibia